Tehran – The National Week to Support Hemophilia Patients will be held from July 23rd to 2029.
Hemophilia is usually a hereditary bleeding disorder in which the blood does not clot properly, which mainly affects men. It is estimated that it occurs in about one animal per birth of 5,000 men. Hemophilia patients have low levels of proteins called coagulation factors that help to stop bleeding.
This disease can cause spontaneous bleeding within the joints, causing chronic joint disease and pain, causing bleeding in the skin, head and brain, and can cause seizures and paralysis.
It can also lead to injuries and excessive bleeding after surgery. Death can occur if bleeding cannot stop or occurs in a critical organ, such as the brain.
The day of the week will focus on the following themes:
Hemophilia and bleeding disorders in women and girls on Wednesday, July 23rd
Thursday, July 24th, Hemophilia and Physical Therapy
Friday, July 25th, hemophilia, exercise, happiness
Saturday, July 26th, hemophilia and education
Sunday, July 27th, hemophilia and demands
Monday, July 28th, Prevention of Hemophilia and Congenital Deficiency
Tuesday, July 29th, hemophilia and success
Over the past Iranian calendar year that ended March 20th, a total of 26 patients (ages 9-50) of hemophilia have lost their lives from the drug shortage caused by sanctions, according to the chairman of the Iranian Hemophilia Association’s board.
The Food and Drug Administration (FDA) must do its best to distribute the medications patients need fairly.
Officials made a statement on April 23rd on World Hemophilia Day, which is observed on April 17th each year.
Officials went on to say that around 14,000 hemophilia patients are currently registered in the country. The shortage of hemophilia drugs for Factors 8 and 9 is very obvious in countries that put patients at risk.
Apart from the drug shortage, there are several issues with the distribution system due to the lack of careful surveillance. Therefore, he noted that the drug is not fully and appropriately available to hemophilia patients, causing acute problems, including disorders.
World Hemophilia Day aims to promote the importance of taking coordinated and coordinated actions to achieve the vision of global hematology (WFH) of “treatment for all.”
This year’s theme was “Access to everyone: Women and girls also bleeding.” Today, women and girls with hemorrhagic disorder (WGBD) are still undiagnosed and there is a lack of service. The global bleeding disorder community has the power and responsibility to change this. Through recognition, diagnosis, treatment and care, the quality of life for women and girls will improve and the bleeding disorder community will be stronger.
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